Girl with learning difficulties can have life-saving kidney treatment

Girl, 17, with severe learning difficulties can have life-saving kidney treatment, doctors tell delighted parents

Doctors have agreed to let a 17-year-old girl with severe learning difficulties have life-saving kidney dialysis after expressing concerns about her ability to cope with the treatment. 

Hospital bosses wanted a court decision on whether it was in the best interest to allow Sana Hosseini, who has chronic kidney disease to begin the gruelling medical procedure on a trial basis despite initial concerns.

At the latest hearing lawyers told specialist court judge Mrs Justice Theis that without the treatment or a transplant, Sana would die.

They added that specialists had agreed to try dialysis and that her Manchester-based parents, Maryam Nogourani and father Majid Hosseini, who live in the Manchester area, are also ‘very enthusiastic’ about the procedure. 

Sana’s case had been handed over to the Court of Protection, which deals with issues relating to those people who lack the mental capacity to make decisions for themselves. 

Sana Hosseini, 17, will now be able to start a dialysis treatment trial, a judge has ruled 

The judge said that while the dialysis would involve Sana having to sit still for lengthy periods several time a week and the teenager might accidentally tamper with the equipment, putting herself at risk.

But the judge, who is based in London, ruled that the benefits of dialysis ‘heavily’ outweighed the ‘inherent risks’. 

READ MORE: Mother’s joy as son, 29, with severe learning disabilities wins right to ‘life-sustaining’ kidney treatment after doctors wanted to end it

She praised the doctors working hard to prepare for Sana’s dialysis, which included pretending to give Sana’s favourite doll Mario similar treatment.  

Bosses at the Northern Care Alliance NHS Foundation Trust, which is based in Salford, Greater Manchester, have responsibility for Sana’s care and have begun litigation. Mrs Justice Theis said she aimed to review the case in November.

Sana’s parents, whose legal team was led by barrister Victoria Butler Cole KC, said in a statement: ‘We were under immense pressure and stress, it is a huge burden lifted off our shoulders and now we are over the moon.

‘We hugged Sana and all of us cried, and all of us were so emotional that Sana could now live happily.

‘We’re really grateful to Elizabeth and her wonderfully professional team for their hard work, efforts, and helpful support.’

Law firm Irwin Mitchell is representing Sana’s parents. ‘This is a highly emotive and time-sensitive case,’ lawyer Elizabeth Ridley, based at Irwin Mitchell, said.

The judge praised the doctors working hard to prepare for Sana’s dialysis, which included pretending to give Sana’s favourite doll Mario similar treatment

‘Without treatment, Sana would have almost certainly had a very short life expectancy.

‘Sana’s parents strongly consider that their daughter has already responded well to treatment and that she deserves to receive treatment like anyone else, without her learning disabilities, would.

‘The court was asked to decide whether receiving this life-sustaining treatment was in Sana’s best interests.

‘Sana’s parents and the trust have worked together to find the best way to facilitate her urgent treatment.

‘The judge ruled in favour of Sana receiving this life-saving treatment and understandably her parents are delighted with the outcome.

‘They now look forward to Sana being treated and will consider her future need for a donor kidney.’

Ms Ridley said: ‘Following this ruling, they hope Sana will make a good recovery and ultimately be able to continue living a happy, fulfilling life with her loved ones.’

Judges normally rule that patients at the centre of Court of Protection cases should not be named in media reports to protect their privacy. But Mrs Justice Theis ruled that Sana could be named – she said publicity may help to find a kidney donor.

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